Response from: tina

hi im 27 years of age and i have had this condition since i was 9 years old. i would like to contact the family about ben as i know how he feels . i live in britain and there are not very many people who have this condition . so if they would like to talk my email address is thooker788@aol.com

Response from: ruth

thanks for leaving a comment, tina. i'll backtrack and try to find their contact info and will email you if i find a lead. or you can also email the author of the article above and ask if he can put you in contact with the family. ben was also featured by BBC: http://news.bbc.co.uk/2/hi/uk_news/england/devon/5138976.stm
ben is from devon, by the way.

Response from: Lynn

I am a 43 year old female, who has just recently starting reacting to the sun and HEAT. I can't even eat hot soups. It's unbelievable. I would like ANY information that can be helpful mailed to me. Thank you so very much.

Response from: tina

hi the only advice is that is to go to your doctors as it would need to be checked

Response from: ruth

hi lynn, i can't say i'm an expert in sun allergies, but here's a website that might be of help:
http://sun1.awardspace.com/
you might also want to join the support group and exchange notes with others who have sun sensitivities at:
http://health.groups.yahoo.com/group/sun1/
tina, you might also find the support group useful. someone just started a thread on "Sun Sensitive in the UK"... as always, any of these do not replace a trip to your allergist.

Response from: Prue Loveless

Hi my name is Prue Loveless I am 12 years old and i suffer from Actinic Prurigo. I have suffered from this disease for 3 years now. Some days i would get up to go to school and i didn't what to go because i new the kids would tease me and i hated to look at my self in the mira. I have been looking for people for several years now and have not found any one with the same condition as mine. If you could please help me find people with my condition that would be great

Response from: Prue Loveless

Hi this is Tracy Loveless my email address was spelt wrong i will give you the correct one it is mtp88@ncable.net.au

Response from: ruth

hello tracy, am sorry to hear about your daughter's condition. there is a good support group at
http://health.groups.yahoo.com/group/sun1/
register (it's free and easy) and you'll read from so many other people sharing their experiences on sun sensitivities, including actinic prurigo. you probably won't find professional (doctor's) advice there, but i am sure just hearing from other people will give you leads to pursue. at the very least, i hope you can find some support and solace in the group.

Response from: Tracy Loveless

Hello ruth, would it be posible you could give me Ben Ridings address so i could get in contact with him

Response from: Jamie Bolland

Hi, I'm a researcher working for IWC Media in Glasgow. We're currently looking into producing a series on medical condition which also have social effects on the sufferers, and we would like to find someone who suffers from actinic prurigo to publicise the condition and show how it affects lives, particularly those of young people. We would also greatly appreciate any help in getting in touch with Ben Ridings. Thank you all for your time, and if you can help please contact jamie.bolland@iwcmedia.co.uk.

Response from: tina

hi james what suddies is it and age groups u are looking for as i had my conditions since i was 9 now i am 27 years old .

Response from: ruth

Hi Jamie, thanks for leaving a note. I'll forward your note and email address to the yahoogroup of people with sun sensitivities i mentioned above. As for Ben Ridings, I have no further information, unfortunately. Best would be to contact the author of the articles I linked to in my entry.

Response from: Raven Lovecraft (Check me out!)

I'm always been sensitive to light and heat, though until I was 14 it wasn't more than that. For 6 years now (14 till present) I've had an allergy to light. Until recently no one believed me, not even doctors. I now have a new doctor who has seen the effects, and now at 19 I'm hopefully going to be getting somewhere. No one is sure exactly what it is I have, but my symptons are reddening skin which quickly turns purple if the exposure is continued, my skin begins to flake and peel off, I bloat out, and I also break out in spots/blisters, though the above symptons is what I commenly get as I'm not exposed long enough for the blisters to come. I avoid light, at most I'm in it for a couple of mintues, and the burning is very apparent. The sun is the worst, and even thick with clouds it makes little to no difference. Floresent lighting also effects me, I redden in less than a minute, as does lightbulbs, though it takes longer for the same amount of pain to overcome me. I also get drained of strengh, and my mind seems to shut down. I just basically get very tired. I am interested in speaking with others who share light sensitivity. I've never met anyone like me, or been in any type of comunication. If you'd like to chat, my e-mail is fearfulshadow@hotmail.co.uk

Response from: Maria (Check me out!)

hello My son too is allergic to the sun we have a support group and we also have 69 people world wide in the group that have children with sun allergies , please contact me or go to my sons webpage http://www.vp-it.com.au/sammyjoe/

Response from: ruth (Check me out!)

hi paula, i really recommend joining this email group: http://health.groups.yahoo.com/group/sun1/
it'd help, even if just to exchange notes, or chat about your condition.

Response from: sarah (Check me out!)

if i go out in the sun it can kill me!i'm extremely allegic to the sun.the sun makes me severely sick when i go out in it.

Response from: sarah (Check me out!)

i don't like the sun any ways.i hate it with a passion

Response from: sarah (Check me out!)

i'm extremely allegic to the sun.it can even kill me.i hate the sun anyways.i hate it with a passion.the sun makes me sick when i go out in it.

Response from: sarah (Check me out!)

i can't even go outside because of the sun!i hate it so much!

Response from: Drug Addiction (Check me out!)

I always thought of allergies as some kind of disease but not that harsh. I can't even imagine how that kid is holding on, not being able to play with his friends due to sun exposure.

Response from: treatment (Check me out!)

Many sufferers do not immediately associate their symptoms with sunlight: even a brief exposure of 15 minutes can trigger a reaction some hours or days later. Some have problems only in summer, when sunlight is at its strongest.

Response from: HumaF (Check me out!)

its been 8 yrs since i have a war with the sun! due to prolonged exposure, i usually end up having small watery blisters around my lips and also my face swells up. is this actinic prurigo??!hw do i treat it? plz respond!

Response from: HumaF (Check me out!)

There are no doctors near my area who have even heard of this condition. so, i am sick of even getting a check up done these days. i only suffer alone. it really feels grt to know there actually are ppl with my comdition. thks.

Response from: HumaF (Check me out!)

its been 8 yrs since my war with the sun! due to prolonged exposure, i usually get small watery blisters around my lips.. is this actinic prurigo?? There are no doctors near my area who have even heard of this condition. so, i am sick of even getting a check up done these days. i only suffer alone. it really feels grt to know there actually are ppl with my condition. plz suggest a treatment. somebody kindly respond.

Response from: HumaF (Check me out!)

its been 8 yrs since my war with the sun! due to prolonged exposure, i usually get small watery blisters around my lips and my face also swells up...is this actinic prurigo?? There are no doctors near my area who have even heard of this condition. so, i am sick of even getting a check up done these days. i only suffer alone. it really feels grt to know there actually are ppl with my condition. plz suggest a treatment. somebody kindly respond.

Response from: drug rehab program (Check me out!)

Now that sounds familiar, I've had that sort of problem forever. My doctor though said it were no real problem, but a mere over exposure of a sensitive skin

Response from: Amy (Check me out!)

Hi my name is Amy, I've had actinic prurigo since I was eight years old and now nineteen. I suggest you look into a sunscreen called Anthelios "L" It's a 60 sunscreen that is hard to find, so speak with a pharmacist, to whoever this may concern. It is distributed from Laboratoires La Roche-Posay Canada Montreal, H4T 1k5 Please look into it, you won't be sorry :)